- cross-posted to:
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- cross-posted to:
- [email protected]
- [email protected]
Summary
RFK Jr. is using private medical records to create a registry of people with autism in the United States.
The National Institutes of Health is helping to collect private medical records from government and commercial databases, including “prescription records from pharmacies, lab testing, and genomics records from the Department of Veterans Affairs and Indian Health Service, private insurance claims, and data from smartwatches and fitness trackers.”
Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals. He has called autism “preventable” and claimed “he can find a cure for the condition by September.”
OK, how are they getting consent for this from the subjects? I do basic research with tissue from patients and if they change their mind and revoke consent, we are legally obligated to destroy any remaining tissue or data.
Consent is required only if you believe in the law.
Based on recent history, Trump will declare some sort of national health emergency that will allow him to ignore laws and court orders that get in his way.